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Open Letter To The Presidential Campaigns

ADAPT is a national grass-roots community that organizes disability rights activists to engage in nonviolent direct action, including civil disobedience, to assure the civil and human rights of people with disabilities to live in freedom. Formed by a collective of local ADAPT Chapters, National ADAPT has worked for the past 30 years to promote community living for aging and disabled people through reform of the long term service and support system. The undersigned represent the collective that constitutes ADAPT, as distinguished from other smaller, unofficial organizations representing themselves and their smaller, discrete groups and specific interests.

Current systems reinforce a “bias” in long term services and supports; Medicaid automatically pays for institutional placement. States have to build a parallel long term services and supports system to allow people to remain in their own homes and communities. Housing development has not kept pace with the need for accessible, usable units for people with disabilities. Wages and benefits for workers in homes are unequal to those offered to workers in facilities. Equipment as simple as shower benches or as essential as wheelchairs require users to navigate complicated payment and authorization systems. 

The situation aging and disabled people have confronted with COVID-19 has exposed how the biases in our current system mean death to us. COVID-19 has pointed to an imperative to shore up existing long term services and support systems and community resources to keep out of and deliver from aging and disabled people from institutional settings. ADAPT activists are looking for Presidential leadership through aggressive and explicit immediate plans to address gaps in the current system for aging and disabled people that result in unnecessary institutionalization and create barriers for returning to the community. 

National recovery from the COVID-19 pandemic will offer the opportunity and the imperative to re-build the long term services and supports system. We will have the opportunity to evaluate the gaps in the past system that placed aging and disabled people squarely at the center of the tempest. We will be able to clearly identify how systemic racism has meant that Black, Indigenous and People of Color suffered higher rates of exposure, infection, and death. We will value housing that offers safe harbor and security as we are able to control who comes in and out of our homes. As more people learn the reality of living with disability, we will place more value on physical and programmatic access in all areas of community life. 

As we have for the past 30 years, ADAPT looks to the next Presidential Administration to lead the way toward building communities that support and fully include aging and disabled people. ADAPT challenges all systems and policymakers to promote community integration and aggressively dismantle the system of institutional bias that segregates, isolates, and discriminates against people with all types of disabilities, and compounds the discrimination and exclusion of disabled Black, Indigenous and People of Color. We have long embraced the reality that change does not happen in the absence of demand; social and political progress requires relentless advocacy and activism. ADAPT expects public servants and elected officials to share our commitment to the following and we look to the campaigns to provide concrete plans for moving these issues of our rights, our well-being, and our lives forward that include: 

Ending the Institutional Bias in health care and long term services and supports

Money Follows the Person as a permanent program

Housing – stabilizing affordability and expanding accessibility for integrated housing

COVID-19 Home and Community Based Services (HCBS) Funding

Direct Support Workforce wages, benefits, recruitment and retention for self-directing aging and disabled people using community-based long term services and supports

Implementation of policies that keep people from going into institutions, rehabilitation facilities, group homes, state hospitals, detention and carceral centers, and any other type of congregate setting.

FREE OUR PEOPLE,

Arizona ADAPT Florida ADAPT
Philadelphia ADAPT South Carolina ADAPT
Kansas ADAPT Southwest Pennsylvania ADAPT
Massachusetts ADAPT ADAPT of Texas
Montana ADAPT Desert ADAPT
ADAPT of Erie, Pennsylvania D.C. Metro ADAPT
North Central Pennsylvania ADAPT Washington ADAPT
Central Pennsylvania ADAPT Wisconsin ADAPT
Capitol Region ADAPT, NY Downstate NY ADAPT
ROC ADAPT, NY

#DisabledNotDisposable #ADAPTandSurvive #LivesWorthyOfLife
NationalADAPT.org @RealNatlADAPT on Twitter & Instagram, ADAPT National on Facebook and TikTok, National ADAPT on YouTube
ADAPTnational@gmail.com

ADAPT Holds Web Hearing in DC To Demand COVID Relief and Services for Aging and Disabled

For Immediate Release: Friday, October 2, 2020

For More information: 
Erika Jones, erickatiff@hotmail.com, (585) 261-1594, www.nationaladapt.org

ADAPT Holds Web Hearing in DC To Demand COVID Relief and Services for Aging and Disabled

Washington DC—- ADAPT, the nation’s largest grassroots disability rights activist organization, is camped on the East lawn of the nation’s Capitol, where they will hold a hearing from 2pm to 4pm  Friday to impress Congress and American voters with the vital importance of Medicaid funded Home and Community-based Services (HCBS). These services make it possible for disabled and aging people to remain in their own homes instead of being forced into nursing homes and institutions, and also are critical for moving people out of  those nursing homes and institutions which have become literal death traps during the Covid pandemic.

“Our hearing will be available on ADAPT National Facebook Live, and speakers include Sen. Bob Casey, former Congressperson Beto O’Rourke, and people from Texas, to Pennsylvania, to Florida and states in between,” said Jennifer McPhail of ADAPT of Texas. “There will be testimony on how the loss of the Affordable Care Act would be devastating for people with pre-existing conditions, and why it is imperative that Congress pass a new COVID relief package that includes funding for HCBS, PPE, housing, and livable wages for those who provide our care.”

Disabled and aging people in nursing homes, institutions, and other congregate settings like jails, prisons, and detention camps, are dying of COVID at alarming rates, and in alarming numbers. COVID relief packages so far have pumped money into nursing facilities, but those funds have not prevented 40% of the COVID deaths, a total of over 70,000, from occurring in the nation’s nursing homes. Every day more and more nursing facilities and other congregate settings are becoming COVID cluster sites.

ADAPT’s hearing in DC will be echoed in communities across the nation, where testimony will be given locally and fed in to the online hearing.

“Of the measures passed to date by Congress to address the COVID pandemic, none  has authorized funding to protect and support the 12 million disabled and aging people living in their own homes,” said Rhoda Gibson activist from MASS ADAPT. “Nor has any funding been authorized to provide a living wage, benefits, and hazard pay during the pandemic to support the attendant care workers who keep disabled and aging people living in their own homes. And none of the funding authorized so far has ensured that personal protective equipment and other necessary supplies are available to people living in the community and their workers.” 

Confirmation of Amy Coney Barrett before the November elections will also be addressed in the hearing.  Based on the record of her decisions to date, and the upcoming ACA case on the Supreme Court docket,  her confirmation could have dire consequences for disabled, aging and low income people.  ADAPT demands that the appointment should not be rushed, but should be made by the incoming president.

#ADAPTpplsHearing #DisabledNotDisposable #ADAPTandSurvive #LivesWorthyOfLife
NationalADAPT.org @RealNatlADAPT on Twitter & Instagram, ADAPT National on Facebook and TikTok, National ADAPT on YouTube
ADAPTnational@gmail.com

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National ADAPT Press Release October 1, 2020

For Immediate Release
October 1, 2020

For More information: 
Erika Jones, erickatiff@hotmail.com, (585) 261-1594, www.nationaladapt.org

ADAPT Demands Congress Include Funding for HCBS to Stop COVID Nursing Home Deaths of Aging and Disabled

Washington DC—- ADAPT, the nation’s largest grassroots disability rights activist organization, is on the East lawn of the nation’s Capitol, demanding Congress include significant funding in a new COVID relief package to stem the flood of deaths that have occurred in congregate settings during the COVID -19 pandemic. The funding is vital for preventing the forced institutionalization that has led to thousands of deaths in these congregate settings, and for providing PPE and adequately paid caregivers to keep people safer in their own homes. Additional funding is also needed to provide affordable, accessible housing in the community. A second ADAPT demand is permanent reauthorization of the Money Follows the Person program. And a third demand is no Supreme Court appointment until after the November 3rd election.

Disabled and aging people in nursing homes, institutions, and other congregate settings like jails, prisons, and detention camps, are dying of COVID at alarming rates, and in alarming numbers. Covid relief packages so far have pumped money into nursing facilities, but those funds have not prevented 40% of the Covid deaths from occurring in the nation’s nursing homes. Every day more and more nursing facilities and other congregate settings are becoming Covid cluster sites.

Multiple chapters in ADAPT’s national network are joining the call to action in their own communities to demand that Congress provide funding for Home and Community Based Services to protect disabled and aging people living in the community; and to help disabled and aging people currently housed in institutions move to the safety of their own homes by reauthorizing the federal Money Follows the Person program. 

“Of the measures passed to date by Congress to address the COVID pandemic, none  has authorized funding to protect and support the 12 million disabled and aging people living in their own homes,” said Rhoda Gibson activist from MA ADAPT. “Nor has any funding been authorized to provide a living wage, benefits, and hazard pay during the pandemic to support the attendant care workers who keep disabled and aging people living in their own homes. And none of the funding authorized so far has ensured that personal protective equipment and other necessary supplies are available to people living in the community and their workers.” 

The federal Money Follows the Person program has supported thousands of people to move from institutions into their own homes. In the absence of formal reauthorization since the program sunset in 2018, some states have had to end their programs, and all states have seen a sharp decline in the number of people who have been able to benefit from the program. Permanent reauthorization is necessary to ensure a safe way for people to get out of dangerous institutions and back to their own homes. 

Confirmation of Amy Coney Barrett before the November elections could have dire consequences for disabled and aging people and their health care, based on the record of her decisions to date, and the upcoming cases on the Supreme Court docket. ADAPT demands that the appointment should not be rushed, but should be made by the incoming president.

#ADAPTpplsHearing #DisabledNotDisposable #ADAPTandSurvive #LivesWorthyOfLife
NationalADAPT.org @RealNatlADAPT on Twitter & Instagram, ADAPT National on Facebook and TikTok, National ADAPT on YouTube
ADAPTnational@gmail.com

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HCBS FUNDING IN COVID PACKAGE ACTION SAMPLE PRESS RELEASE

ADAPT Advocates from across the Country Demand Senators Fund Services to Keep Disabled and Aging People Safe and Living in their Own Homes

MM/DD/YY PRESS ALERT FOR IMMEDIATE RELEASE

For More information: 
(Contact Name & phone number and/or email)

WHO: (ADAPT Chapter)
WHAT: Disability Rights Activists Send Messages to Senators to fund Home and Community Based Services and make Money Follows the Person permanent

WHERE: (Address for the location)

WHEN:  (Time if an event is happening)

Disabled and Aging people being held in institutions are dying of COVID at alarming rates. Congressional COVID Relief packages so far have pumped more money into institutions but people are still dying; more nursing facilities and other congregate settings are labeled as cluster sites every day. 

(Local ADAPT Chapter), as part of ADAPT’s national network of grassroots disability activists, is participating in a call to action. The call to action has been organized to call upon Senators to protect disabled and aging people living in the community by providing additional funding for Home and Community Based Services and help disabled and aging people in institutions move to the safety of their own homes by reauthorizing the federal Money Follows the Person program. 

Resources are needed to keep disabled and aging people in their homes safely. NONE of the laws Congress has passed to address the COVID pandemic have had funding to protect and support the 12 million disabled and aging people living in their own homes. None of the funding has supported the workers who keep disabled and aging people living in their own homes through better wages or benefits. None of the resources have ensured that personal protective equipment or other supplies are available to people living in the community and their workers. 

The federal Money Follows the Person program has supported thousands of people in moving from institutions into their own homes. Since the program’s ending in 2018, Congress has provided extension funding, but the loss of the formal program has meant some states have ended the program, and in all states the number of people who have been able to benefit from the program has sharply dropped. Permanent reauthorization is necessary to ensure a safe way for people to get out of dangerous institutions and back to their own homes. 

(Local ADAPT Chapter) will be (Describe what actions you will be doing on this day) to reach our Senators who returned to work in D.C. on July 21st. Funding Home and Community Based Services and re-authorizing Money Follows the Person must be first priorities for the next round of COVID relief. 

Download Sample Press Release HERE

#DisabledNotDisposable #ADAPTandSurvive #LivesWorthyOfLife
NationalADAPT.org @RealNatlADAPT on Twitter & Instagram, ADAPT National on Facebook and TikTok, National ADAPT on YouTube
ADAPTnational@gmail.com

National ADAPT Statement on 30th Anniversary of the ADA

The passage of the Americans with Disabilities Act (ADA) was a watershed event in the history of disability rights. In the weeks leading up to its passage, members of ADAPT used the power of our collective strength and organizing to help push it across the finish line. ADAPT acted out the injustices facing disabled people by crawling up the stairs to the Capitol building.

When the Americans with Disabilities Act was passed, it was meant to make our communities inclusive of all people. We expected the ADA to make accessibility available in all kinds of buildings. We expected the ADA to encourage service providers to make their programs open for all people. We expected the ADA to enable us to move freely in our communities. We expected the ADA to clear a path so we could work, play, and live with non-disabled neighbors, friends, and family members.

Since the signing of the ADA 30 years ago, the law has helped many people get jobs, move around in our communities, go to stores and use services, communicate, and participate in community life. On this 30th Anniversary of the signing of the Americans with Disabilities Act, we honor and thank those who came before us in the fight for disability rights.

30 years after the signing of the ADA, too many disabled people still live behind the walls of institutions. Too many disabled people are sent to state hospitals. Too many disabled people sit in prisons, jails, and detention centers. And now, in the shadow of global pandemic, too many disabled people are forgotten and dying in institutions. 

On this 30th Anniversary of the signing of the Americans with Disabilities Act, we commit ourselves to push forward with calls for disability justice. We embrace a more inclusive, more intersectional vision of our integration. We press forward on the unrealized vision that has left thousands of disabled people in institutions and invite well funded disability rights and justice organizations to join us by committing in word and actions.

Today, as it was 30 years ago and before, National ADAPT calls out to FREE OUR PEOPLE.

National ADAPT mourns the loss of Representative John Lewis

National ADAPT mourns the loss of civil rights giant and disability rights community member, Representative John Lewis. As a leader of the Civil Rights Movement, his work and values inspired the founding of ADAPT and heavily impacted the work we continue to do. Many members of ADAPT have fond memories of running into Representative Lewis on the Hill where he often asked about the good trouble of the day and cheered us on. A tried and true activist, Lewis spoke several times at ADAPT rallies and bolstered the spirits of those in attendance. As a disability rights champion, he fought for legislation that supported the community and made impassioned speeches on the House floor in support of disability issues. During one such speech regarding his opposition to HR 620 the ADA Education and Reform Act, Representative Lewis said, “There is no place in our country for the burden to be placed upon those whose rights have and will be violated time and time again.” A statement he held true to as he continued to lift the voices of those who were too often silenced. 

At times like this, ADAPT strives to fight with the same spirit of Representative Lewis’ activism  for those whose rights are under attack. We hope to make the good trouble he always called us to make. This enormous loss weighs heavily on our hearts.

Rest in Power Representative Lewis. 

National ADAPT Statement on Covid-19 Deaths in Segregated Congregate Institutions

It is time to recognize the similarities between systemic police violence and systems that imprison people, how race and disability intertwine, and how all congregate institutions including prisons, institutions for people with developmental disabilities, psychiatric institutions, and immigrant detention camps arise from systems designed to oppress those whom society devalues.

Covid-19 has killed over 32,750  disabled people  in substandard nursing homes in the United States, with a disparate number of those being people of color, (https://www.nytimes.com/article/coronavirus-nursing-homes-racial-disparity.html). National ADAPT is compelled to speak out against this widespread and horrifying human rights catastrophe.

ADAPT strongly denounces the ongoing human rights violations committed against disabled people in all congregate care settings, and we reject the notion that age and underlying conditions sufficiently explain the outrageously high rate of death in these institutions. The occurrence of neglect, abuse, terror, and despair that disabled people experience daily in these facilities is well documented. Yet we continue to be socially removed from our families, homes, and communities in the name of cost-effectiveness, efficiency, or worse, for the convenience and comfort of non-disabled society, and the profit of health care professionals and shareholders.

No longer will we excuse or abide the socially accepted biases that dehumanize disabled people.

No longer will we accept the tired rationalization of “where else are we going to put them” that has been used to justify sending us to die in dismal human warehouses; nor, when deaths are expedited, that they are a natural outcome of age, chronic illness, and impairment, rather than the neglect and abuse fostered by ableist social structures and attitudes.

National ADAPT and our state chapters will no longer abide callous professionals, ignorant of disability theory and rights, who exploit us for their own personal career advancement, and for the advancement of their professions and agencies. We condemn the nonchalant discussions that we must regularly endure in professional forums—discussions, without us, about what is best for us, and questions about where significantly disabled people should be warehoused without any thought to community integration—and everyday discussion that dismisses or erases the annihilation of tens of thousands of disabled people as merely a “natural process” or even beneficial to society as a whole. We equally condemn the doctors with financial interests in congregate care institutions, who sign orders sending us there, again with no consideration of home and community settings and services.  

No longer will we accept the naive and hollow promises of institutional reform, as disabled people have endured neglect and abuse in institutions for over a hundred years without significant change despite countless acts, reviews, legislation, and congressional hearings. The Government Accounting Office (GAO) recently found that 82% of American nursing homes had an infection prevention and control deficiency cited in in one or more years, with about half of these facilities having had persistent problems and having been cited across multiple years. We need more diversion from institutions of all kinds, and more affordable, accessible integrated housing in our communities.

It is time to come to terms with the reality that abuse, neglect, and death are not isolated incidents that can be addressed individually through underfunded Ombudsman programs, insincere band aids of ‘culture change,’ or through impotent state regulatory agencies that remain stuck in antiquated medical model perspectives of disability. Instead, we must admit that dehumanization is the very bedrock of institutional segregation.


There is no excuse for the disregard of our basic humanity, especially 56 years after the passage of the Civil Rights Act, 30 years after the passage of the Americans with Disabilities Act and 21 years after the United States Supreme Court Olmstead decision.  Enough is enough!

*This number does not include death tolls from states that have been negligent in reporting infections and deaths in assisted living facilities, state institutions, groups homes, or other congregate ‘care’ settings, or who have reported to CDC, but have chosen not to make their numbers public.

National ADAPT’s Response to Vice President Biden’s Plan

Dear Vice President Biden,

National ADAPT commends you for your newly released Plan to Help Americans with Disabilities. Your plan demonstrates an understanding of the discrimination that people with disabilities face and a commitment to our rights. However, there is still work to be done. 

In order to truly mobilize the disability vote and demonstrate your respect and commitment to the Disability Community, you must hire a Senior Advisor on Disability Issues for your campaign, to help you engage respectfully with the Disability Community, to be a liaison to the Disability Community, and to assure true accessibility at all of your campaign events.

The language you use about disability in your written disability plan is far more respectful than the words you use when referencing the Disability Community in your speeches.  In your speeches you have claimed that “everyone” has a disability, that disabilities should be “overcome,” and that disabled people are “not defined” by our disabilities. These statements are harmful. It is not only inaccurate to say that “everyone” has a disability, but it undermines every person with a disability, and makes light of our disability identities. Suggesting that disabilities are negative attributes to overcome is ableist, when in fact what we must overcome are the barriers of stigma, discrimination, and inequitable systems. Declaring that we are “not defined” by our disabilities ignores the great many people who are disabled and proud, who want to be seen and respected as disabled people. A Senior Advisor on Disability Issues would help you choose respectful language as you prepare your speeches.

While your disability plan is comprehensive, it is not complete.
ADAPT demands:

1.    Housing; While the plan refers to affordable, accessible, integrated housing, it offers no specific plan to bring housing stock into line with the number of accessible units needed. The plan proposes to further invest in “supportive housing” which obligates tenants to use services or risk losing housing, conditions long opposed by disability advocates.There must be an increased number of affordable accessible integrated housing units independent of service delivery.


2.    Ending the Institutional Bias; The institutional bias exists across all payment and policy systems. Institutional entitlements and preferences embedded in federal law and regulations must end. Aggressive investment in community infrastructure must be concrete, specific and responsive to the needs of individual communities and the people who live there.


3.    Workforce Development; Increased wages are a start in addressing the personal care workforce shortage in the community, but the recruitment and retention of personal care workers only begins with dollars and cents. A comprehensive approach to the infrastructure that will develop a quality workforce as demands increase is needed.


4.    Covid-19; The section of your Covid Plan referencing people with disabilities and their care takers in the community must include the provision of sufficient personal protective equipment for both of these parties.

Thank you again, for finally releasing a disability plan. We look forward to working with a Biden Administration, and your Director of Disability Policy to assure that your campaign commitments become our reality.

Sincerely,
National ADAPT

National ADAPT Condemns Police Brutality and Calls for Racial Justice

In the middle of a pandemic, Black, Indigenous, and people of color (BIPOC) are not just being killed at alarming rates by COVID19, but are yet again being senselessly targeted by police, and some have been murdered.

For years, on the first day of each National ADAPT Action we hold legal and new members’ meetings. These meetings always include a reminder of police brutality toward Black, brown and indigenous people, and people from other oppressed communities.

National ADAPT condemns the recent murders of:

Ahmaud Arbery, a 25-year-old, unarmed young man who was out jogging, and murdered by the McMichaels, who were tipped off by an off-duty police officer;

Nicolas Chavez, a 27-year-old father of 3 young children, was fatally shot after Chavez was on his knees reeling from being shot not only by sandbags but also a taser;

Breonna Taylor was a 26-year-old certified EMT and first responder during the pandemic. On May 13 police forcibly entered her apartment and shot her 8 times as she slept.

Malik Williams The Police Department in Federal Way, Washington executed this man while he sat in his car. Not being able to move he was shot 86 times.

Jeremy McDole 28, parapalegic killed by Wilmington, DE police.

Saheed Vassell shot 19 times by NYC police Department. The officers jumped out and started firing without warning.He had a psychiatric disability.

Dreasjon “Sean” Reed, a 21-year-old, gunned down by Indianapolis police while he was live streaming a Facebook video; and

On May 26, George Floyd, who was murdered by suffocation while handcuffed and on the ground when a police officer kneeled with all his weight on Floyd’s neck.

We vehemently condemn and must put an end to all murders of BIPOC by police brutality.

Engaging in protest and non-violent civil disobedience is a right National ADAPT has long exercised under the First Amendment of our nation’s Constitution.
However, to protest without fear of violent reprisal, and even death, is a privilege reserved for our white siblings in the disability rights movement. Our disability rights movement owes a great deal to the Black civil rights movement that laid the groundwork for us under the spray of firehoses, the torrent of fists, and too many bullets.

We live today with a system that compounds the social and psychic damage experienced by the ancestors of Black, brown and Indigenous people, bridging the mob lynchings, and smallpox laden blankets of yesteryear into police “lynchings” of today. It is long past time for this to end!

National ADAPT, our local chapters, and our individual advocates and activists commit to the following:

We will call out as racial terrorism the acts of white people when they threaten, harass, and commit acts of violence against Black people and other people of color in public spaces.

We will not re-play, post, or amplify images, videos or depictions of Black people and other people from marginalized groups experiencing violence, because we recognize the trauma experienced by repeated exposure to these images.

We will continue to actively oppose the institutionalization of all people, and the damage done through institutionalization. Our fight includes opposing mass incarceration, the over-criminalization in the legal system, and the racial presumption of guilt that permeate the Black experience in this country and result in disproportionate numbers of BIPOC living in prisons, jails, psychiatric facilities, nursing facilities, and other institutions.

We will continue our anti-racism and equity work to lift up the experiences of multiply marginalized members of our community, to center them, their stories, and their solutions to the systemic racism and ableism we are committed to bringing to an end.
We hold ourselves and our disability rights siblings to the anti-racism work that is intrinsically linked to the fight for disability rights.

As an organization made up of committed social justice warriors, ADAPT cleaves to the teachings of Dr. Martin Luther King, Jr., as one of the leaders of the movement we build upon in our work, “Injustice anywhere is a threat to justice everywhere. We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.”

We, the members of National ADAPT, demand the senseless murders end. We can have no justice, no peace, no freedom and no rest until we have justice for our Black and Brown and Indigenous family.

#BlackLivesMatter

#SayTheirNames

#LivesWorthyOfLife