Blog

National ADAPT Statement on 30th Anniversary of the ADA

The passage of the Americans with Disabilities Act (ADA) was a watershed event in the history of disability rights. In the weeks leading up to its passage, members of ADAPT used the power of our collective strength and organizing to help push it across the finish line. ADAPT acted out the injustices facing disabled people by crawling up the stairs to the Capitol building.

When the Americans with Disabilities Act was passed, it was meant to make our communities inclusive of all people. We expected the ADA to make accessibility available in all kinds of buildings. We expected the ADA to encourage service providers to make their programs open for all people. We expected the ADA to enable us to move freely in our communities. We expected the ADA to clear a path so we could work, play, and live with non-disabled neighbors, friends, and family members.

Since the signing of the ADA 30 years ago, the law has helped many people get jobs, move around in our communities, go to stores and use services, communicate, and participate in community life. On this 30th Anniversary of the signing of the Americans with Disabilities Act, we honor and thank those who came before us in the fight for disability rights.

30 years after the signing of the ADA, too many disabled people still live behind the walls of institutions. Too many disabled people are sent to state hospitals. Too many disabled people sit in prisons, jails, and detention centers. And now, in the shadow of global pandemic, too many disabled people are forgotten and dying in institutions. 

On this 30th Anniversary of the signing of the Americans with Disabilities Act, we commit ourselves to push forward with calls for disability justice. We embrace a more inclusive, more intersectional vision of our integration. We press forward on the unrealized vision that has left thousands of disabled people in institutions and invite well funded disability rights and justice organizations to join us by committing in word and actions.

Today, as it was 30 years ago and before, National ADAPT calls out to FREE OUR PEOPLE.

National ADAPT mourns the loss of Representative John Lewis

National ADAPT mourns the loss of civil rights giant and disability rights community member, Representative John Lewis. As a leader of the Civil Rights Movement, his work and values inspired the founding of ADAPT and heavily impacted the work we continue to do. Many members of ADAPT have fond memories of running into Representative Lewis on the Hill where he often asked about the good trouble of the day and cheered us on. A tried and true activist, Lewis spoke several times at ADAPT rallies and bolstered the spirits of those in attendance. As a disability rights champion, he fought for legislation that supported the community and made impassioned speeches on the House floor in support of disability issues. During one such speech regarding his opposition to HR 620 the ADA Education and Reform Act, Representative Lewis said, “There is no place in our country for the burden to be placed upon those whose rights have and will be violated time and time again.” A statement he held true to as he continued to lift the voices of those who were too often silenced. 

At times like this, ADAPT strives to fight with the same spirit of Representative Lewis’ activism  for those whose rights are under attack. We hope to make the good trouble he always called us to make. This enormous loss weighs heavily on our hearts.

Rest in Power Representative Lewis. 

National ADAPT Statement on Covid-19 Deaths in Segregated Congregate Institutions

It is time to recognize the similarities between systemic police violence and systems that imprison people, how race and disability intertwine, and how all congregate institutions including prisons, institutions for people with developmental disabilities, psychiatric institutions, and immigrant detention camps arise from systems designed to oppress those whom society devalues.

Covid-19 has killed over 32,750  disabled people  in substandard nursing homes in the United States, with a disparate number of those being people of color, (https://www.nytimes.com/article/coronavirus-nursing-homes-racial-disparity.html). National ADAPT is compelled to speak out against this widespread and horrifying human rights catastrophe.

ADAPT strongly denounces the ongoing human rights violations committed against disabled people in all congregate care settings, and we reject the notion that age and underlying conditions sufficiently explain the outrageously high rate of death in these institutions. The occurrence of neglect, abuse, terror, and despair that disabled people experience daily in these facilities is well documented. Yet we continue to be socially removed from our families, homes, and communities in the name of cost-effectiveness, efficiency, or worse, for the convenience and comfort of non-disabled society, and the profit of health care professionals and shareholders.

No longer will we excuse or abide the socially accepted biases that dehumanize disabled people.

No longer will we accept the tired rationalization of “where else are we going to put them” that has been used to justify sending us to die in dismal human warehouses; nor, when deaths are expedited, that they are a natural outcome of age, chronic illness, and impairment, rather than the neglect and abuse fostered by ableist social structures and attitudes.

National ADAPT and our state chapters will no longer abide callous professionals, ignorant of disability theory and rights, who exploit us for their own personal career advancement, and for the advancement of their professions and agencies. We condemn the nonchalant discussions that we must regularly endure in professional forums—discussions, without us, about what is best for us, and questions about where significantly disabled people should be warehoused without any thought to community integration—and everyday discussion that dismisses or erases the annihilation of tens of thousands of disabled people as merely a “natural process” or even beneficial to society as a whole. We equally condemn the doctors with financial interests in congregate care institutions, who sign orders sending us there, again with no consideration of home and community settings and services.  

No longer will we accept the naive and hollow promises of institutional reform, as disabled people have endured neglect and abuse in institutions for over a hundred years without significant change despite countless acts, reviews, legislation, and congressional hearings. The Government Accounting Office (GAO) recently found that 82% of American nursing homes had an infection prevention and control deficiency cited in in one or more years, with about half of these facilities having had persistent problems and having been cited across multiple years. We need more diversion from institutions of all kinds, and more affordable, accessible integrated housing in our communities.

It is time to come to terms with the reality that abuse, neglect, and death are not isolated incidents that can be addressed individually through underfunded Ombudsman programs, insincere band aids of ‘culture change,’ or through impotent state regulatory agencies that remain stuck in antiquated medical model perspectives of disability. Instead, we must admit that dehumanization is the very bedrock of institutional segregation.


There is no excuse for the disregard of our basic humanity, especially 56 years after the passage of the Civil Rights Act, 30 years after the passage of the Americans with Disabilities Act and 21 years after the United States Supreme Court Olmstead decision.  Enough is enough!

*This number does not include death tolls from states that have been negligent in reporting infections and deaths in assisted living facilities, state institutions, groups homes, or other congregate ‘care’ settings, or who have reported to CDC, but have chosen not to make their numbers public.

National ADAPT’s Response to Vice President Biden’s Plan

Dear Vice President Biden,

National ADAPT commends you for your newly released Plan to Help Americans with Disabilities. Your plan demonstrates an understanding of the discrimination that people with disabilities face and a commitment to our rights. However, there is still work to be done. 

In order to truly mobilize the disability vote and demonstrate your respect and commitment to the Disability Community, you must hire a Senior Advisor on Disability Issues for your campaign, to help you engage respectfully with the Disability Community, to be a liaison to the Disability Community, and to assure true accessibility at all of your campaign events.

The language you use about disability in your written disability plan is far more respectful than the words you use when referencing the Disability Community in your speeches.  In your speeches you have claimed that “everyone” has a disability, that disabilities should be “overcome,” and that disabled people are “not defined” by our disabilities. These statements are harmful. It is not only inaccurate to say that “everyone” has a disability, but it undermines every person with a disability, and makes light of our disability identities. Suggesting that disabilities are negative attributes to overcome is ableist, when in fact what we must overcome are the barriers of stigma, discrimination, and inequitable systems. Declaring that we are “not defined” by our disabilities ignores the great many people who are disabled and proud, who want to be seen and respected as disabled people. A Senior Advisor on Disability Issues would help you choose respectful language as you prepare your speeches.

While your disability plan is comprehensive, it is not complete.
ADAPT demands:

1.    Housing; While the plan refers to affordable, accessible, integrated housing, it offers no specific plan to bring housing stock into line with the number of accessible units needed. The plan proposes to further invest in “supportive housing” which obligates tenants to use services or risk losing housing, conditions long opposed by disability advocates.There must be an increased number of affordable accessible integrated housing units independent of service delivery.


2.    Ending the Institutional Bias; The institutional bias exists across all payment and policy systems. Institutional entitlements and preferences embedded in federal law and regulations must end. Aggressive investment in community infrastructure must be concrete, specific and responsive to the needs of individual communities and the people who live there.


3.    Workforce Development; Increased wages are a start in addressing the personal care workforce shortage in the community, but the recruitment and retention of personal care workers only begins with dollars and cents. A comprehensive approach to the infrastructure that will develop a quality workforce as demands increase is needed.


4.    Covid-19; The section of your Covid Plan referencing people with disabilities and their care takers in the community must include the provision of sufficient personal protective equipment for both of these parties.

Thank you again, for finally releasing a disability plan. We look forward to working with a Biden Administration, and your Director of Disability Policy to assure that your campaign commitments become our reality.

Sincerely,
National ADAPT

National ADAPT Condemns Police Brutality and Calls for Racial Justice

In the middle of a pandemic, Black, Indigenous, and people of color (BIPOC) are not just being killed at alarming rates by COVID19, but are yet again being senselessly targeted by police, and some have been murdered.

For years, on the first day of each National ADAPT Action we hold legal and new members’ meetings. These meetings always include a reminder of police brutality toward Black, brown and indigenous people, and people from other oppressed communities.

National ADAPT condemns the recent murders of:

Ahmaud Arbery, a 25-year-old, unarmed young man who was out jogging, and murdered by the McMichaels, who were tipped off by an off-duty police officer;

Nicolas Chavez, a 27-year-old father of 3 young children, was fatally shot after Chavez was on his knees reeling from being shot not only by sandbags but also a taser;

Breonna Taylor was a 26-year-old certified EMT and first responder during the pandemic. On May 13 police forcibly entered her apartment and shot her 8 times as she slept.

Malik Williams The Police Department in Federal Way, Washington executed this man while he sat in his car. Not being able to move he was shot 86 times.

Jeremy McDole 28, parapalegic killed by Wilmington, DE police.

Saheed Vassell shot 19 times by NYC police Department. The officers jumped out and started firing without warning.He had a psychiatric disability.

Dreasjon “Sean” Reed, a 21-year-old, gunned down by Indianapolis police while he was live streaming a Facebook video; and

On May 26, George Floyd, who was murdered by suffocation while handcuffed and on the ground when a police officer kneeled with all his weight on Floyd’s neck.

We vehemently condemn and must put an end to all murders of BIPOC by police brutality.

Engaging in protest and non-violent civil disobedience is a right National ADAPT has long exercised under the First Amendment of our nation’s Constitution.
However, to protest without fear of violent reprisal, and even death, is a privilege reserved for our white siblings in the disability rights movement. Our disability rights movement owes a great deal to the Black civil rights movement that laid the groundwork for us under the spray of firehoses, the torrent of fists, and too many bullets.

We live today with a system that compounds the social and psychic damage experienced by the ancestors of Black, brown and Indigenous people, bridging the mob lynchings, and smallpox laden blankets of yesteryear into police “lynchings” of today. It is long past time for this to end!

National ADAPT, our local chapters, and our individual advocates and activists commit to the following:

We will call out as racial terrorism the acts of white people when they threaten, harass, and commit acts of violence against Black people and other people of color in public spaces.

We will not re-play, post, or amplify images, videos or depictions of Black people and other people from marginalized groups experiencing violence, because we recognize the trauma experienced by repeated exposure to these images.

We will continue to actively oppose the institutionalization of all people, and the damage done through institutionalization. Our fight includes opposing mass incarceration, the over-criminalization in the legal system, and the racial presumption of guilt that permeate the Black experience in this country and result in disproportionate numbers of BIPOC living in prisons, jails, psychiatric facilities, nursing facilities, and other institutions.

We will continue our anti-racism and equity work to lift up the experiences of multiply marginalized members of our community, to center them, their stories, and their solutions to the systemic racism and ableism we are committed to bringing to an end.
We hold ourselves and our disability rights siblings to the anti-racism work that is intrinsically linked to the fight for disability rights.

As an organization made up of committed social justice warriors, ADAPT cleaves to the teachings of Dr. Martin Luther King, Jr., as one of the leaders of the movement we build upon in our work, “Injustice anywhere is a threat to justice everywhere. We are caught in an inescapable network of mutuality, tied in a single garment of destiny. Whatever affects one directly, affects all indirectly.”

We, the members of National ADAPT, demand the senseless murders end. We can have no justice, no peace, no freedom and no rest until we have justice for our Black and Brown and Indigenous family.

#BlackLivesMatter

#SayTheirNames

#LivesWorthyOfLife

ADAPT Demands that Congress Support Home and Community Services and Supports, Community Workforce, and Housing

The long existing need for the reform of outdated Medicaid long term care policy has never been more apparent than now, when thousands of disabled people of all ages have been dying in nursing homes and other congregate settings where they have no protection from the highly contagious COVID-19.

National ADAPT demands that Congress:

1.     Provide funding in any COVID Stimulus 4.0 package to pay for Home and Community Based Services and Supports (HCBS), and related workforce costs, housing, and transportation needs and support the Coronavirus Relief for Seniors and People with Disabilities Act of 2020 (S. 3544 and H.R. 6305). 

2.     Make Money Follows the Person permanent in law to ensure people can leave institutions and live in their own homes in the community.

3.     Designate the home and community workforce as essential, and ensure adequate Personal Protective Equipment (PPE) is provided for both home and community workers and the people they assist.

4.     Provide funding so that the essential community workers are paid a fair and living wage commensurate with the risks they take to provide essential services and supports, including paid leave time in case they fall ill, hazard pay and overtime.

5.     Immediately remove the “institutional bias” from Medicaid law and policy.

6.     Invest in massive support for development of integrated, affordable, accessible housing in cities, towns and rural areas; infrastructure and rental assistance; and emergency options that address needs caused by the COVID crisis.

PDF Version

Open Letter to Congress from the Real National ADAPT

Dear Congress:

For 30 years ADAPT has challenged the federal government’s preference to fund nursing facilities and other institutions over home and community based services and supports (HCBS) that most older and disabled people say they want. People have had the right to stay in their own homes and live in their own communities with the services and supports they need, instead of being forced into nursing facilities and other institutional/congregate settings since 1990.  However, this right has never been realized due to lack of support for home and community services, an extremely under-compensated and undervalued home and community workforce, and due to lack of affordable, accessible, integrated housing.  We call this the institutional bias.

This long existing need for the reform of outdated Medicaid long term care policy has never been more apparent than now, when thousands of disabled people of all ages have been dying in nursing homes and other congregate settings where they have no protection from the highly contagious COVID 19, and where staff have not been provided with sufficient personal protective equipment (PPE). Even as major media outlets are reporting on the increasing death tolls of our family members and friends dying alone in nursing facilities across the nation,  none of the trillions of dollars in COVID emergency spending that Congress has  passed has gone toward the real, long term solution: ending the institutional bias and supporting HCBS, the HCBS workforce, and affordable, accessible, integrated housing.

There is an old adage that the government doesn’t believe in prevention, and so you won’t fund a stop sign until a kid gets killed while crossing an intersection. The time for this stop sign has well passed. The tens of thousands of deaths caused by the Coronavirus could have been greatly reduced if our federal government had acted earlier, and if Congress had listened to National ADAPT for the past 30 years and reduced nursing home and institutional settings with much needed reform in long term care, workforce and housing policies.

So we say to you now, have enough people needlessly died that you will finally listen to National ADAPT and address the institutional bias? Now is the time to sufficiently fund home and community services. Now is the time to fund affordable, accessible, integrated housing. Now is the time to provide liveable wages to the essential workforce of direct support workers that allow us to live in the community. 

Now is the time because for 30 years we have told you that we want to live in the community. For 30 years we have told you that institutions are not safe for us. Now it is on the front page of your newspaper. Now it is in your newsfeed and you can not scroll past us anymore. Now thousands have died in nursing facilities and other institutions – our parents, our siblings, our friends. Now is the time for change. 

ADAPT is ready to come to the table and work with Congress to end the institutional bias anytime. Right NOW, we demand that funding for HCBS (including Money Follows the Person), community workforce, and housing (including emergency housing) be included in the COVID 4 package.

FREE OUR PEOPLE!

The Real ADAPT Community

PDF Version

#ADAPTandSurvive Call To Action

ADAPT and PACT members in wheelchairs and on foot wearing PPE holding protest signs in front of Texas Governor's Mansion
Photo 3: ADAPT and PACT members in wheelchairs and on foot wearing PPE holding protest signs in front of Texas Governor’s Mansion 04/28/2020

ADAPT DEMANDS Congress support our right to live in the community by funding Home and Community Based Services, supporting our Community Workforce, making personal protective equipment available, and ensuring we have affordable, accessible, integrated housing.

ADAPT has sent an Open Letter to Congress demanding action now. We must make sure Congress pays attention and responds to our needs!

  1. Join in on the Lives Worth Life social media campaign! The campaign is explained in this video by Latoya Chivon. To participate, make and post short videos, photos, and signs explaining why you and/or your loved ones have #LivesWorthyOfLife.  Contact Latoya at (267)815-8688 if you have questions or need help. Check out our talking points and more details coming soon on our website including scripts.
  2. Use the primary hashtags #ADAPTandSurvive #DisabledNotDisposable #LivesWorthyOfLife and secondary hashtags #OurHomesNotNursingHomes #MyLifeIsWorthyOfLife  #ADAPTorPerish #Covid19 in your posts regarding COVID-19.
  3. Contact your legislators regarding our demands for important legislation that will Free Our People and keep them safe like passing Coronavirus Relief for Seniors and People with Disabilities Act of 2020 (S. 3544 and H.R. 6305), making Money Follows the Person permanent, making personal protective equipment available, and ensuring we have affordable, accessible, integrated housing. You can use our sample letter template to contact your members of Congress or our sample Tweets.
  4. Drive a caravan with cars and vans with signs, noise makers, etc. around like a march. The vehicle march can go past Congressional home offices, media outlets, and other prominent places in your community to bring attention to this issue.
  5. Contact the media to call a press conference about this campaign. Tell them this campaign is part of coordinated action across multiple states. Invite the media to witness your caravan event. Reach out to adaptnational@gmail.com for assistance. Check out talking points and sample press materials will be on nationalADAPT.org soon.
  6.  Hold a local action in whatever style most suits you. Be loud, be proud, and be safe.

Let local and national media know what you are doing.

Please share your postings, pictures and stories about how you and your group are sending the message that the disability community will #ADAPTandSurvive are #DisabledNotDisposable have #LivesWorthyOfLife and#ADAPTorPerish in the time of #Covid19. National ADAPT will be using posts and submissions for social media and publications.

#DisabledNotDisposable #ADAPTandSurvive #LivesWorthyOfLife
NationalADAPT.org @RealNatlADAPT on Twitter & Instagram, ADAPT National on Facebook and TikTok, National ADAPT on YouTube
ADAPTnational@gmail.com
  

Chicago ADAPT demanded Rep. Dunkin support a fair contract for child care and in-home service providers

By Scott Nance
Chicago ADAPT

On Monday, February 22, over 30 representatives of Chicago ADAPT and friends from at least 7 concerned organizations protested at Representative Ken Dunkin’s office at 2059 East 75th St. in Chicago.

Chicago ADAPT demanded Representative Dunkin support a fair contract for child care and in-home service providers as well as other public employees, support full funding of services and progressive revenue, vote in favor of Illinois House Bill 4351 (a bill protecting in-home services for people with disabilities and seniors), and to meet with Chicago ADAPT Wednesday, March 16 to continue dialogue.

Shelly Berry, a constituent in Dunkin’s district, remarked: “Representative Dunkin has turned his backs on us and we demand an apology for his recent remarks insulting the disabled community and betraying the public trust.”

Chants of betrayal and demands for representing the people and not corporate interests were apparently unheard by Representative Dunkin, as he refused to acknowledge the crowd assembled at his office doorstep.

Chicago ADAPT is a grassroots disability rights group dedicated to the civil rights, independence, and integration of people with disabilities.